medical marijuana refugees

Do People Move to Access Legal Marijuana? Yes — Meet ‘Medical Refugees.’

It’s not uncommon to hear anecdotal stories of individuals or families who must move for medical reasons — specifically, access to medical cannabis. Some of these cases draw considerable media attention, like that of Yvonne Cahalane, the Irish mother who moved to Colorado for her then-2-year-old son, who suffers from a seizure disorder called Dravet syndrome, according to the United Kingdom newspaper The Guardian.

For Cahalane, her journey to find help for her son took her across an ocean. But many Americans are moving for the same reason, shifting across the nation as legislation governing cannabis changes state-by-state.

The displacement of families seeking legal medical marijuana is becoming so well known that they now have a name: medical refugees. They tell their stories to reporters, document their struggles on social media, and while caring for ailing family members, hope to inspire legal changes.

They also join groups such as American Medical Refugees, a Colorado-based support group for families hoping to connect with those in similar situations and find resources. The organization was co-founded by Amy Dawn Bourlon-Hilterbran after she moved to Colorado from Oklahoma in 2013 for her son, Austin, who has Dravet syndrome. (Oklahoma wouldn’t legalize medical marijuana for another five years, but the plant has proven exceptionally popular among patients in the conservative state .)

These heart-wrenching anecdotes of ailing children and the risks their parents take to help them are not hard to find, but data that measure their numbers are sparse.

Data Not Readily Available

The moving company U-Haul tracks migration trends, but it and others don’t ask customers how they feel about cannabis. The tech company, which helps people figure out the best methods for their move, doesn’t specifically ask people why they’re packing up. However, founder Ryan Carrigan noted in 2018 that of the 1,500 inbound moves his company had facilitated to legal states (then Oregon , Washington , California , Nevada , Colorado, Maine , Massachusetts , and Arkansas ) almost 5% voluntarily mentioned legal cannabis as a reason for their move. Of those, three said it was the No. 1 factor in their move. Two were individuals older than 65 hoping to use cannabis for pain relief , while one was a parent seeking cannabis treatment for a child who suffered from seizures .

Census data can also chart the ebbs and flows in a state’s population, but it doesn’t ask whether people relocate for medical marijuana. Researchers have done their own polling. In the study “The Pot Rush: Is Legalized Marijuana a Positive Local Amenity” released in March 2018, researchers Diego Zambiasi of the University of Basque Country in Spain , and Steven Stillman of the Free University of Bozen-Bolzano in Italy and the Institute of Labor Economics (IZA) in Germany , reported that they found “strong evidence” that migrants saw legal cannabis as a positive amenity . They compared the actual post-legalization growth of Colorado with a “synthetic Colorado,” or, a composite of 13 states where cannabis isn’t legal.

According to Zambiasi’s and Stillman’s study, prior to legalization from 2005 to 2009, 187,600 people on average migrated to Colorado annually. After medical marijuana was legalized in 2010 and up to 2013 when adult-use was legalized, in-migration increased by 20,760 people per year, an 11% increase, in Colorado compared with synthetic Colorado. After full legalization in 2013, in-migration further increased by 15,470 people per year, an additional 8.2% increase.

The researchers’ statistical analysis determined that the rise wasn’t from chance, but that Colorado was “a clear and significant outlier.”

Further, “In total, 155,500 more people moved to Colorado than predicted … .” In the end, the researchers concluded that marijuana legalization increased Colorado’s population by 3.2% in 2015. Numbers tell part of the story.

Helping Families Move

According to American Medical Refugees board member Sebastien Cotte, the organization helped about 400 families in some way midway through 2018, up from about 150 two years earlier, according to media reports. These families had moved to Colorado from more than 35 states and three countries.

Cotte and his wife Annett know well what these families face. Their son, Jagger, has Leigh syndrome, a neurometabolic disorder that manifests in seizures, muscle pain, difficulty breathing, and other symptoms. Cotte became interested in cannabis as a possible treatment for his son in 2013, after seeing “Weed,” Dr. Sanjay Gupta’s documentary about medical cannabis, on CNN. He connected with other parents in Georgia through medical cannabis advocacy organization Americans for Safe Access, but their initial attempts to pass a bill legalizing medical marijuana in Georgia failed. In 2014, Cotte’s family decided to move to Colorado. They were one of 17 families to leave Georgia at that time, many of them receiving financial aid from Republican state Rep. Allen Peake.

Access to legal medical marijuana has prompted patients or caregivers, often parents of children with serious medical conditions, to move to states where it’s available. One support group calls them medical refugees. (Illustration by Franck Boston via Shutterstock)

Jagger’s condition makes it impossible to fly, and Cotte described the six-day, cross-country drive as treacherous.

“When Jagger gets his muscle pain, he starts screaming. The more he was screaming, the more oxygen he needed. So pretty much every three to four hours we had to stop, spend the night in a hotel, calm him down, and recharge the battery on the oxygen [machine],” Cotte said.

Cotte’s difficult move illustrates a common pain point for these families. Not only do they have to move, but traveling is often far more difficult with an ill child or family member. They are forced to make a complicated journey, away from their home, friends, and support network. Cotte said some families were forced to split up, with certain members moving to legal states while the others stayed behind to keep their jobs and provide financial support. And many of them just want to go home.

“You leave everything behind and hope for the best and you don’t know if it’s gonna work. It’s taxing emotionally and financially. It’s not something easy to do or that I would recommend anyone doing unless you really have to,” Cotte said.

Cotte moved back to Georgia in after it became legal to possess low-THC cannabis oil in 2015. The bill was called the Haleigh’s Hope Act after a young girl who suffered from near-constant seizures. Her family also moved to Colorado for medical cannabis.

Returning Home

Cotte was happy to return to Georgia. The altitude in Colorado made it hard for Jagger to breathe, plus it was a financial strain to pay both their Georgia mortgage and their Colorado rent. Most of those other 17 families have also moved back home, too, Cotte said. Yet things aren’t perfect.

For one, Georgians can possess cannabis oil with only 5% THC or less, and they must have a qualifying condition to apply for a card. And while it may be legal to possess the oil, there’s currently no legal way to purchase it. Republican Gov. Brian Kemp signed a bill that now allows the production, distribution, and import of medical cannabis in April 2019, but months will pass before the state’s patients will be able to walk into a dispensary. Those who need it now must break the law to get it.

Advocate and lobbyist Jason Eassa pointed to two high-profile cases of someone intentionally breaking the law to get medicine to Georgia families. Peake, the same lawmaker who provided financial aid to Cotte’s family, has admitted to running an underground medical marijuana network. And there’s Dale Jackson, a Georgia father whose son takes cannabis oil for autism and who has openly described in the LaGrange Daily News how harrowing it is to smuggle $15,000 worth of cannabis oil out of Denver International Airport .

“There’s no reason somebody should have to pay for a plane ticket or use a private jet to get to Colorado and buy $15,000 worth of oil and bubble wrap it, scared that TSA’s gonna see it, and fly it all the way back [to Georgia],” Eassa said. “And frankly, there’s no reason someone should have to drive down to Florida for it.”

It’s the constant worry of legal ramifications that silences many families and individuals who move for cannabis. According to Cotte, there may be double as many people who moved to Colorado for cannabis than American Medical Refugees even knows about.

‘Fear or at Least Uncertainty’

David Brown, an attorney, lobbyist, and president of Sensible Marijuana Policy for Louisiana, said there’s often “an element of fear or at least uncertainty” for these medical refugees. He points to a veteran who was worried that if he were more vocal about his need for medical cannabis, he might lose his federally funded veterans benefits . Some parents worry about the legality of providing a federally illegal substance to a minor, or that they may face prosecution or lose their children if they speak out. As a result, Brown said it’s hard for his organization to accurately track how many people they work with and how many people are moving.

“I’m certain that even if we had assigned everyone a number, we would have only captured a small fraction,” he said. “A lot of these people are not networked. Maybe they heard from a friend or family member that there’s someone they could stay with in another place, so they leave and don’t talk to anyone about it.”

And while cases involving ill children often receive the lion’s share of media attention, there are adult medical refugees, too, including veterans, senior citizens, and individuals suffering from myriad conditions.

Zoey Bullock, a cannabis consultant who goes by the nickname Betty Chronix , said she moved from Virginia to Florida for access to medical cannabis . Bullock was 12 years old when she was sexually assaulted, which left her with anxiety and post-traumatic stress disorder (PTSD) . At one point, Bullock even attempted suicide. Then, as a teen, her friends introduced her to cannabis.

“It was, really, just the only thing that gave me some calm and some peace with anxiety,” Bullock said. “Today, being a medical patient, it’s even better because I’m able to really know what I’m consuming and it really helps to be able to use medical cannabis.”

Bullock and Rhian Santini, an esthetician and reiki practitioner, are in the early stages of their nonprofit, The Healing Light Foundation . They work with local shelters to find women survivors of abuse and domestic violence and connect them to healing and wellness services, including medical cannabis, massage, and spiritual work. Some women are already fleeing domestic violence or volatile situations in their home states, so Bullock hopes to expand her network to cities and states that are not currently 420-friendly .

“We want to have a bigger presence in the U.S. to be the supportive element for women who want to relocate for cannabis,” Bullock said.

While individuals and families are still relocating for cannabis, the moves for medical cannabis have likely already peaked because of changing U.S. laws. Cotte noted that back in 2014, when his family was preparing to move, some families were leaving home simply to access CBD. With the passage of the 2018 Farm Bill , which allows people across the country to purchase hemp-derived products , those moves may no longer occur.

Until medical cannabis is federally legal and easily accessible, the stigma and fear these families and individuals face will likely remain. There may never be an accurate count of medical refugees in the U.S., but some are working hard to make that number zero.

Correction: A previous version of this article stated that then-Republican Gov. Nathan Deal signed a bill expanding cannabis access to patients. The article has been updated to reflect that current Republican Gov., Brian Kemp, signed the bill on April 17, 2019.

Feature image: A study by professors from Spain and Italy found in-migration to Colorado increased when both medicinal and adult-use marijuana were available when compared with a composite of 13 other states where marijuana wasn’t available. The researchers said marijuana availability alone accounted for 3.2% of Colorado’s population increase. (Photo by LeManna via Shutterstock)

Do People Move to Access Legal Marijuana? Yes — Meet ‘Medical Refugees.’ It’s not uncommon to hear anecdotal stories of individuals or families who must move for medical reasons — specifically,

Calypso Homepage

September 4, 2019

Marijuana Migration: The Story of Medical Refugees

In 2014, Colorado was the first state to legalize adult-use or recreational marijuana. Before legislation was even passed, people began flocking to the state with anticipation and a desire to experience the benefits of “fully legal” marijuana. [1]

This significant migration pattern was captured in a 2018 study.

Researchers found that between 2005 and 2009, an average of 187,600 people moved to Colorado each year to access medical marijuana. Between 2010 and 2013, these numbers increased by 20,760 per year—an 11% increase. When marijuana became fully legal in 2014, the number of people who moved to Colorado increased by an additional 8.2%. Based on this data, researchers concluded marijuana legalization had increased Colorado’s total population by 3.2%.

Marijuana migration continues to be relevant today, particularly for individuals and families seeking marijuana for medical purposes. And although a number of states have adopted medical marijuana programs, their qualifying conditions, methods of consumption, and other treatment factors vary and may not be suitable for everyone.

Individuals or families that do choose to relocate are often referred to as “medical refugees.” American Medical Refugees (AMR)—a Colorado-based support group—defines medical refugees as “persons who relocated from their preferred area of living, residence, or community, in order to avoid persecution and prosecution for medicinal cannabis treatment.”

With relocation, many medical refugees sacrifice their livelihoods, their social support networks (including family and friends), and their belongings. For most, however, these disruptions are worth it if it means access to medical relief—and an improved quality of life.

Here are two of their stories.

Autumn Gordon

Treatment for autism and Dravet syndrome

When Autumn was three months old, she was diagnosed with severe autism and Dravet syndrome. Dravet syndrome is a severe type of childhood epilepsy that caused Autumn to have multiple, prolonged seizures—sometimes lasting up to four hours.

In 2018, Christine Gordon moved from Kansas to Colorado to get medical marijuana for her daughter, Autumn. This move, in her own words, saved her daughter’s life.

In less than six months of treatment, Autumn’s cognition, language, and overall health steadily improved.

During a seizure, Autumn often required several doses of rescue medications that caused her to go into respiratory and cardiac arrest. She spent a majority of her life intubated and admitted in an intensive care unit (ICU).

Within a few weeks of living in Colorado, Autumn received her medical marijuana card. And in less than six months of treatment, Autumn’s cognition, language, and overall health steadily improved. She was even able to stop seizure activity in under three minutes and reduce her dependence on pharmaceutical drugs. With less side effects than pharmaceuticals, Autumn is now able to be her authentic self.

Jacqueline Patterson

Treatment for cerebral palsy and post-traumatic stress disorder (PTSD)

Jacqueline Patterson was born with cerebral palsy, a group of disorders that affect a person’s movement, balance, and posture. Because there are multiple types of cerebral palsy, symptoms vary and depend on the location of the affected muscle groups.

For Jacqueline, the muscles on the right side of her body are noticeably weaker and less developed than on her left side. She also has a severe stutter and experiences constant speech spasms.

When Jacqueline was fourteen, she tried marijuana and “experienced what it was like to be without pain for the first time in her life.” As a teen, she self-medicated but struggled with purchasing product through safe and reliable channels. As an adult, she made the conscious decision to leave Missouri and seek treatment in California.

Jacqueline claims medical marijuana helps her numb the chronic pain caused by her condition, as well as improve her speech. When she consumes medical marijuana, she feels more relaxed, her thoughts are less rushed, and she is able to get her words out more easily.

Today, Jacqueline is a medical marijuana advocate and activist, establishing nonprofits to help people with disabilities access medical marijuana and other supportive resources.

These stories and countless others like them resonate with us at Calypso. When you read our story, you’ll learn that our founder, Samuel P. “Pat” Black, III, was compelled to spearhead the development of medical marijuana in Pennsylvania after a family member sought treatment outside of the state—this of course, during a time when medical marijuana was illegal in the Commonwealth.

Fast forward to today, and the medical marijuana industry is booming in Pennsylvania. Residents with one or more qualifying conditions are able to access treatment and experience relief in many ways. Those who may have left Pennsylvania previously are now able to return. However, as long as there are states that have not legalized marijuana for medical use, the migration of medical refugees will continue.

[1] Marijuana is classified as a Schedule I drug under the Controlled Substances Act and, as such, continues to be illegal at the federal level.

Calypso Homepage September 4, 2019 Marijuana Migration: The Story of Medical Refugees In 2014, Colorado was the first state to legalize adult-use or recreational marijuana. Before